Neurologist and UTI

Last Wednesday we went to Christie's first Neurologist appointment.  It wasn't what I thought it'd be...it was more like a glorified well baby visit.  Our Doctor is a woman and really nice, lives not to far from either.  Anyway, she informed us that the true problem isn't that she has Hypoplastic corpus callousm but that there is probably something metabolic or genetically there that we are dealing with, so our next step is to try to get in to a nero genetic doc and a developmental pediatrician.  Ya, not so easy to get in...but we were told the same thing trying to get in to see the neurologist, however, we did get one quickly thanks to our family doc.  I wonder why we are told it will be hard to get in and if we don't to call and they'd try...save a lot of time if they just did it!  Anyway, it's our responsibility, just makes me frustrated when they tell us there are no openings till December....that's unacceptable.  On the flip side though, I am humbled that her little issue whatever it truly is at this point isn't as critical as others have it!  Our neuro doc said that there are people out there living a normal life that have NO corpus callousm, and lets just say that they fall and bump there head really bad and get an MRI and that's how they find out they don't have one...crazy, but they are just fine...so in Christie's case, it's not so much that she has a thin corpus callousm but that she is developmentally delayed: and according to the neurologist has some facial characteristics of something not right:ex, ear placement in alignment with the eyes...anyway, I never noticed but she said that since we are more focused on her cross eyes that it wouldn't be that easy to notice.  All I know is, we need to get with the therapy to help her in development and get with the tests....I just hate wasting a day playing phone tag with doctors...and wish that they could just feel my anxiety and get us in right away, but I know I need patience and I know I need to calm myself and things will work out...I just know it!

On Thursday we went to Kings Dominion and had a fun family day!  Kassidy and Sydney rode their first roller coaster.   Christie had a really rough patch on our trip there....an unusually fussy moment.  In hindsight I see why, cuz Friday she started a fever and by Saturday she was worse, even as high as 104.5 which I don't think I've ever had a baby that I know of go that high...rectally taken even!  So, I ended up taking her to the ER and by the time I got there though she was acting fine...her ibuprofen kicked in a dose I gave her at 11 and we saw the doctor about 3pm...anyway, she was giggling at the doctor and he said "your making mommy out to be a liar"  what a turd... but after his exam he said she looked fine but that he'd to a urine test for uti...and sure enough she has one!  Poor baby...she's still running a fever, but she's a trooper...I had one not to long ago...and it is MISERABLE.  

I am going to call her family doc to see if she need to be seen for a followup and if I should take her in to get her bloodwork done for the genetic testing or not given her fever and antibiotic she is on....anyway...that's the update.  

xoxoxox